Speak slowly and distinctly, making sure to face the child and maintain eye contact
Allow enough time to carefully attend to the needs of the child and family
Provide support to the child and family
Encourage the child and family to ask questions and ensure their understanding of the disease process
Actively listen and answer questions honestly
Encourage the child's and family's participation in the child's care and decision making
Encourage the family to stay with the child
Collaborate with a nutritionist to ensure adequate calorie intake
Collaborate with a speech therapist to assist with communication
Collaborate with an occupational therapist to assist with swallowing and feeding deficit care
Collaborate with a physical therapist to assist with exercises to maintain muscle tone and reduce the risk of contractures
Administer prescribed medications and monitor their effect
Provide frequent mouth and dental care
Assist with the application of braces and splints or the use of assistive devices, as necessary
Provide meticulous skin care and scheduled repositioning, especially to pressure-prone areas, such as under braces and splints
Prepare the child and family for possible surgery and provide all necessary teaching
Provide a safe physical environment
Complete a pediatric fall risk assessment using an approved screening tool, and implement necessary precautions
Initiate seizure precautions per facility policy
Collaborate with the multidisciplinary team to assure that all specialty areas agree with the plan of care
Consult with care management to ensure that all home-going needs are met prior to discharge
Consult with a child life specialist to provide age-appropriate distractions and support
Consult with social services to provide counseling, community resources, and support